A 25-year perspective on advances in the study of the epidemiology, disparities, and outcomes of urologic cancers

Sarah P. Psutka, Eric A. Singer, John Gore

Research output: Contribution to journalReview articlepeer-review

Abstract

In this narrative review, key developments in epidemiologic and clinical outcomes-based research from eminent historical data sources over the past quarter century are summarized. We then describe the rise of secondary and administrative datasets (AD), summarizing the predominant types of available secondary datasets for contemporary research and describe the benefits and inherent limitations in working with secondary data. We review the methodological advances that permit researchers to capitalize on the full capability of secondary data while also addressing the limitations inherent in utilizing these data for the purposes of epidemiologic and outcomes research. Finally, we present candidate strategies to perpetuate this momentum towards optimizing the development of clinical research infrastructure that harnesses the full potential of the ADs to further clinical and epidemiological research, advancing data analysis, and address the many unanswered questions that remain.

Original languageEnglish (US)
JournalUrologic Oncology: Seminars and Original Investigations
DOIs
StateAccepted/In press - 2021

All Science Journal Classification (ASJC) codes

  • Oncology
  • Urology

Keywords

  • Administrative data set
  • Electronic health record
  • Epidemiology
  • Outcomes research
  • Urology

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