A phenomenology of informal caregiving for HIV/AIDS in India: Exploring women's search for authoritative knowledge, self-efficacy and resilience

Shrivridhi Shukla; Judith L.M. McCoyd

doi:10.1080/07399332.2018.1462368

A phenomenology of informal caregiving for HIV/AIDS in India: Exploring women's search for authoritative knowledge, self-efficacy and resilience

Shrivridhi Shukla, Judith L.M. McCoyd

School of Social Work

Research output: Contribution to journal › Article › peer-review

2 Scopus citations

Abstract

Women provide informal caregiving across the world and are often expected to provide care even when ailing themselves. We explore the lived experience of 33 impoverished married Indian women living with HIV and caring for their husbands and/or children living with HIV. Drawing on concepts of authoritative knowledge (AK), self-efficacy and resilience, we found a trajectory that reveals barriers to accessing care, yet we also found that women developed strengths and resiliency. Women gather information, develop “environ-info,” and deliberatively weigh AK from health workers, family/friends' advice, and their own experiences. Over multiple iterations of this process, they build self-reliance and resilience.

Original language	English (US)
Pages (from-to)	755-770
Number of pages	16
Journal	Health Care for Women International
Volume	39
Issue number	7
DOIs	https://doi.org/10.1080/07399332.2018.1462368
State	Published - Jul 3 2018

All Science Journal Classification (ASJC) codes

General Health Professions

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10.1080/07399332.2018.1462368

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A phenomenology of informal caregiving for HIV/AIDS in India: Exploring women's search for authoritative knowledge, self-efficacy and resilience

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