Are priorities of younger patients with knee pain addressed by PROMs? A qualitative study

Objectives: To describe the impact of knee pain and dysfunction in young adults and determine whether current patient reported outcome measures (PROMs) address their recovery priorities. Design: Qualitative. Setting: Outpatient rehabilitation center. Participants: Young adults, 23–30 years. Main outcome measures: 1:1 semi-structured interviews were held and analyzed with NVivo version 11. The Lower Extremity Functional Scale (LEFS), Western Ontario and McMaster Universities Osteoarthritis Index (WOMAC), Knee Injury and Osteoarthritis Outcome Score (KOOS), and International Knee Documentation Committee (IKDC) were compared to participant identified functional limitations. Results: 9 themes were identified in 7 interviews: Incomplete Recovery as Acceptable, Motivation for Adequate Long Term Function, Guidance Needed to Facilitate Recovery, Sports: To Play or Not to Play, Pain, Therapy Participation and Interventions, Impact on Life, Decreased Knowledge and Condition Management, and A Wide Range of Functional Limitations. The LEFS captured 23/26 identified functional activities, the KOOS 22/26, the IKDC 16/26, and the WOMAC 13/26. Conclusions: Incomplete recovery as an acceptable outcome was the most unique theme found in this study. LEFS captured the most relevant functional activities reported by this group. Physical Therapists should consider these findings in PROM selection to better inform meaningful outcome measurement.