Barriers to psychological care among primary caregivers of children undergoing hematopoietic stem cell transplantation

Katie A. Devine, Sharon L. Manne, Laura Mee, Abraham S. Bartell, Stephen A. Sands, Shannon Myers-Virtue, Pamela Ohman-Strickland

Research output: Contribution to journalArticle

5 Scopus citations


Purpose: This substudy of an intervention trial aimed to describe barriers to participation in psychological care among primary caregivers of children who were about to undergo a hematopoietic stem cell transplantation (HSCT), including demographic and medical correlates. Method: Three hundred and twelve primary caregivers of children undergoing HSCT who were approached to participate in a psychological intervention trial (n = 218 enrollees and 94 decliners) completed a measure of barriers to psychological care. Results: The most frequently endorsed barriers to care were focusing on the child as priority, not wanting to leave the child’s bedside, and already having adequate psychosocial support. The least frequently endorsed barriers were location, wait times, and stigma around seeking psychological care. Conclusions: Results suggest that explaining how psychological care for a primary caregiver can positively affect their ill child may reduce barriers to seeking needed support services. Certain practical barriers to care may be irrelevant in inpatient settings where psychological support is offered.

Original languageEnglish (US)
Pages (from-to)2235-2242
Number of pages8
JournalSupportive Care in Cancer
Issue number5
StatePublished - May 1 2016


All Science Journal Classification (ASJC) codes

  • Oncology


  • Hematopoietic stem cell transplantation
  • Primary caregiver
  • Psychological care

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