Barriers to psychological care among primary caregivers of children undergoing hematopoietic stem cell transplantation

Katie Recuay, Sharon Manne, Laura Mee, Abraham S. Bartell, Stephen A. Sands, Shannon Myers-Virtue, Pamela Ohman Strickland

Research output: Contribution to journalArticle

3 Citations (Scopus)

Abstract

Purpose: This substudy of an intervention trial aimed to describe barriers to participation in psychological care among primary caregivers of children who were about to undergo a hematopoietic stem cell transplantation (HSCT), including demographic and medical correlates. Method: Three hundred and twelve primary caregivers of children undergoing HSCT who were approached to participate in a psychological intervention trial (n = 218 enrollees and 94 decliners) completed a measure of barriers to psychological care. Results: The most frequently endorsed barriers to care were focusing on the child as priority, not wanting to leave the child’s bedside, and already having adequate psychosocial support. The least frequently endorsed barriers were location, wait times, and stigma around seeking psychological care. Conclusions: Results suggest that explaining how psychological care for a primary caregiver can positively affect their ill child may reduce barriers to seeking needed support services. Certain practical barriers to care may be irrelevant in inpatient settings where psychological support is offered.

Original languageEnglish (US)
Pages (from-to)2235-2242
Number of pages8
JournalSupportive Care in Cancer
Volume24
Issue number5
DOIs
StatePublished - May 1 2016

Fingerprint

Hematopoietic Stem Cell Transplantation
Caregivers
Primary Health Care
Psychology
Inpatients
Demography

All Science Journal Classification (ASJC) codes

  • Oncology

Keywords

  • Hematopoietic stem cell transplantation
  • Primary caregiver
  • Psychological care

Cite this

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Barriers to psychological care among primary caregivers of children undergoing hematopoietic stem cell transplantation. / Recuay, Katie; Manne, Sharon; Mee, Laura; Bartell, Abraham S.; Sands, Stephen A.; Myers-Virtue, Shannon; Ohman Strickland, Pamela.

In: Supportive Care in Cancer, Vol. 24, No. 5, 01.05.2016, p. 2235-2242.

Research output: Contribution to journalArticle

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T1 - Barriers to psychological care among primary caregivers of children undergoing hematopoietic stem cell transplantation

AU - Recuay, Katie

AU - Manne, Sharon

AU - Mee, Laura

AU - Bartell, Abraham S.

AU - Sands, Stephen A.

AU - Myers-Virtue, Shannon

AU - Ohman Strickland, Pamela

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