Delivery of internet-based cancer genetic counselling services to patients' homes: A feasibility study

Neal J. Meropol; Mary B. Daly; Hetal S. Vig; Frank J. Manion; Sharon L. Manne; Carla Mazar; Camara Murphy; Nicholas Solarino; And Vadim Zubarev

doi:10.1258/jtt.2010.100116

Delivery of internet-based cancer genetic counselling services to patients' homes: A feasibility study

Neal J. Meropol, Mary B. Daly, Hetal S. Vig, Frank J. Manion, Sharon L. Manne, Carla Mazar, Camara Murphy, Nicholas Solarino, And Vadim Zubarev

Research output: Contribution to journal › Article › peer-review

38 Scopus citations

Abstract

We examined the feasibility of home videoconferencing for providing cancer genetic education and risk information to people at risk. Adults with possible hereditary colon or breast and ovarian cancer syndromes were offered Internet-based counselling. Participants were sent web cameras and software to install on their home PCs. They watched a prerecorded educational video and then took part in a live counselling session with a genetic counsellor. A total of 31 participants took part in Internet counsellingsessions. Satisfactionwith counsellingwas high in all domains studied, including technical (mean 4.3 on a 1-5 scale), education (mean 4.7), communication (mean 4.8), psychosocial (mean 4.1) and overall (mean 4.2). Qualitative data identified technical aspects that could be improved. All participants reported that they would recommend Internet-based counselling to others. Internet-based genetic counselling is feasible and associated with a high level of satisfaction among participants.

Original language	English (US)
Pages (from-to)	36-40
Number of pages	5
Journal	Journal of Telemedicine and Telecare
Volume	17
Issue number	1
DOIs	https://doi.org/10.1258/jtt.2010.100116
State	Published - Jan 2011
Externally published	Yes

All Science Journal Classification (ASJC) codes

Health Informatics

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10.1258/jtt.2010.100116

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title = "Delivery of internet-based cancer genetic counselling services to patients' homes: A feasibility study",

abstract = "We examined the feasibility of home videoconferencing for providing cancer genetic education and risk information to people at risk. Adults with possible hereditary colon or breast and ovarian cancer syndromes were offered Internet-based counselling. Participants were sent web cameras and software to install on their home PCs. They watched a prerecorded educational video and then took part in a live counselling session with a genetic counsellor. A total of 31 participants took part in Internet counsellingsessions. Satisfactionwith counsellingwas high in all domains studied, including technical (mean 4.3 on a 1-5 scale), education (mean 4.7), communication (mean 4.8), psychosocial (mean 4.1) and overall (mean 4.2). Qualitative data identified technical aspects that could be improved. All participants reported that they would recommend Internet-based counselling to others. Internet-based genetic counselling is feasible and associated with a high level of satisfaction among participants.",

author = "Meropol, {Neal J.} and Daly, {Mary B.} and Vig, {Hetal S.} and Manion, {Frank J.} and Manne, {Sharon L.} and Carla Mazar and Camara Murphy and Nicholas Solarino and Zubarev, {And Vadim}",

note = "Funding Information: The project was partly funded by grants from the Pennsylvania Department of Health and the National Cancer Institute (grant no. P30 CA006927).",

year = "2011",

month = jan,

doi = "10.1258/jtt.2010.100116",

language = "English (US)",

volume = "17",

pages = "36--40",

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T1 - Delivery of internet-based cancer genetic counselling services to patients' homes

T2 - A feasibility study

AU - Meropol, Neal J.

AU - Daly, Mary B.

AU - Vig, Hetal S.

AU - Manion, Frank J.

AU - Manne, Sharon L.

AU - Mazar, Carla

AU - Murphy, Camara

AU - Solarino, Nicholas

AU - Zubarev, And Vadim

N1 - Funding Information: The project was partly funded by grants from the Pennsylvania Department of Health and the National Cancer Institute (grant no. P30 CA006927).

PY - 2011/1

Y1 - 2011/1

N2 - We examined the feasibility of home videoconferencing for providing cancer genetic education and risk information to people at risk. Adults with possible hereditary colon or breast and ovarian cancer syndromes were offered Internet-based counselling. Participants were sent web cameras and software to install on their home PCs. They watched a prerecorded educational video and then took part in a live counselling session with a genetic counsellor. A total of 31 participants took part in Internet counsellingsessions. Satisfactionwith counsellingwas high in all domains studied, including technical (mean 4.3 on a 1-5 scale), education (mean 4.7), communication (mean 4.8), psychosocial (mean 4.1) and overall (mean 4.2). Qualitative data identified technical aspects that could be improved. All participants reported that they would recommend Internet-based counselling to others. Internet-based genetic counselling is feasible and associated with a high level of satisfaction among participants.

AB - We examined the feasibility of home videoconferencing for providing cancer genetic education and risk information to people at risk. Adults with possible hereditary colon or breast and ovarian cancer syndromes were offered Internet-based counselling. Participants were sent web cameras and software to install on their home PCs. They watched a prerecorded educational video and then took part in a live counselling session with a genetic counsellor. A total of 31 participants took part in Internet counsellingsessions. Satisfactionwith counsellingwas high in all domains studied, including technical (mean 4.3 on a 1-5 scale), education (mean 4.7), communication (mean 4.8), psychosocial (mean 4.1) and overall (mean 4.2). Qualitative data identified technical aspects that could be improved. All participants reported that they would recommend Internet-based counselling to others. Internet-based genetic counselling is feasible and associated with a high level of satisfaction among participants.

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Delivery of internet-based cancer genetic counselling services to patients' homes: A feasibility study

Abstract

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