Enhancing supportive care and promoting quality of life: Clinical practice guidelines

James Oleske, A. Rubin-Hale, C. Diaz, M. Brady, J. Cervia, M. Culname, L. Czarniecki, D. Donovan, S. Foster, M. G. Fowler, M. Heyman, S. Instone, B. Kammerer, B. Lane, W. Lenderking, C. Maniglia, M. Nozyce, A. Ordway, A. Rogers

Research output: Contribution to journalReview article

4 Citations (Scopus)

Abstract

The SCQL Committee is committed to improving the QOL of all children infected and affected by HIV/AIDS. Children should always be cared for in a loving family environment. The willingness of children and their guardians to participate in our pediatric and perinatal ACTG trials places an obligation on the investigator to ensure not only scientific integrity of the clinical trials, but that the principles outlined above are respected and supported. The definition of QOL varies from person to person and its subjective nature makes measurement difficult. The SCQL Committee offers the following as parameters for such a definition: Having the encouragement and support of others to dream about tomorrow. To wake up each day with purpose and goals. To be able to live, play, and work comfortably and happily in the home, at school, or on the job. To be free of pain and other symptoms as much as possible through the progression of the disease. To be held and comforted by your loved ones at the time of death.

Original languageEnglish (US)
Pages (from-to)187-203
Number of pages17
JournalPediatric AIDS and HIV Infection
Volume6
Issue number4
StatePublished - Jan 1 1995

Fingerprint

Practice Guidelines
Quality of Life
Disease Progression
Acquired Immunodeficiency Syndrome
Research Personnel
Clinical Trials
HIV
Pediatrics

All Science Journal Classification (ASJC) codes

  • Pediatrics, Perinatology, and Child Health

Cite this

Oleske, J., Rubin-Hale, A., Diaz, C., Brady, M., Cervia, J., Culname, M., ... Rogers, A. (1995). Enhancing supportive care and promoting quality of life: Clinical practice guidelines. Pediatric AIDS and HIV Infection, 6(4), 187-203.
Oleske, James ; Rubin-Hale, A. ; Diaz, C. ; Brady, M. ; Cervia, J. ; Culname, M. ; Czarniecki, L. ; Donovan, D. ; Foster, S. ; Fowler, M. G. ; Heyman, M. ; Instone, S. ; Kammerer, B. ; Lane, B. ; Lenderking, W. ; Maniglia, C. ; Nozyce, M. ; Ordway, A. ; Rogers, A. / Enhancing supportive care and promoting quality of life : Clinical practice guidelines. In: Pediatric AIDS and HIV Infection. 1995 ; Vol. 6, No. 4. pp. 187-203.
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Oleske, J, Rubin-Hale, A, Diaz, C, Brady, M, Cervia, J, Culname, M, Czarniecki, L, Donovan, D, Foster, S, Fowler, MG, Heyman, M, Instone, S, Kammerer, B, Lane, B, Lenderking, W, Maniglia, C, Nozyce, M, Ordway, A & Rogers, A 1995, 'Enhancing supportive care and promoting quality of life: Clinical practice guidelines', Pediatric AIDS and HIV Infection, vol. 6, no. 4, pp. 187-203.

Enhancing supportive care and promoting quality of life : Clinical practice guidelines. / Oleske, James; Rubin-Hale, A.; Diaz, C.; Brady, M.; Cervia, J.; Culname, M.; Czarniecki, L.; Donovan, D.; Foster, S.; Fowler, M. G.; Heyman, M.; Instone, S.; Kammerer, B.; Lane, B.; Lenderking, W.; Maniglia, C.; Nozyce, M.; Ordway, A.; Rogers, A.

In: Pediatric AIDS and HIV Infection, Vol. 6, No. 4, 01.01.1995, p. 187-203.

Research output: Contribution to journalReview article

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T1 - Enhancing supportive care and promoting quality of life

T2 - Clinical practice guidelines

AU - Oleske, James

AU - Rubin-Hale, A.

AU - Diaz, C.

AU - Brady, M.

AU - Cervia, J.

AU - Culname, M.

AU - Czarniecki, L.

AU - Donovan, D.

AU - Foster, S.

AU - Fowler, M. G.

AU - Heyman, M.

AU - Instone, S.

AU - Kammerer, B.

AU - Lane, B.

AU - Lenderking, W.

AU - Maniglia, C.

AU - Nozyce, M.

AU - Ordway, A.

AU - Rogers, A.

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Oleske J, Rubin-Hale A, Diaz C, Brady M, Cervia J, Culname M et al. Enhancing supportive care and promoting quality of life: Clinical practice guidelines. Pediatric AIDS and HIV Infection. 1995 Jan 1;6(4):187-203.