Ethics guidelines for research with the recently dead

Rebecca D. Pentz, Cynthia B. Cohen, Mark Wicclair, Michael A. DeVita, Anne Lederman Flamm, Stuart J. Youngner, Ann B. Hamric, Mary S. McCabe, Jacqueline J. Glover, Winona J. Kittiko, Kathy Kinlaw, James Keller, Adrienne Asch, John J. Kavanagh, Wadih Arap

Research output: Contribution to journalReview articlepeer-review

55 Scopus citations

Abstract

The objective of the multidisciplinary expert Consensus Panel on Research with the Recently Dead (CPRRD) was to craft ethics guidelines for research with the recently dead. The CPRRD recommends that research with the recently dead: (i) receive scientific and ethical review and oversight; (ii) involve the community of potential research subjects; (iii) be coordinated with organ procurement organizations; (iv) not conflict with organ donation or required autopsy; (v) use procedures respectful of the dead; (vi) be restricted to one procedure per day; (vii) preferably be authorized by first-person consent, though both general advance research directives and surrogate consent are acceptable; (viii) protect confidentiality; (ix) not impose costs on subjects' estates or next of kin and not involve payment; (x) clearly explain ultimate disposition of the body.

Original languageEnglish (US)
Pages (from-to)1145-1149
Number of pages5
JournalNature medicine
Volume11
Issue number11
DOIs
StatePublished - Nov 2005
Externally publishedYes

All Science Journal Classification (ASJC) codes

  • Biochemistry, Genetics and Molecular Biology(all)

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