Iterative development of a tailored mHealth intervention for adolescent and young adult survivors of childhood cancer

Lisa A. Schwartz, Alexandra M. Psihogios, Dare Henry-Moss, Lauren C. Daniel, Elizabeth S. Ver Hoeve, Blanca Velazquez-Martin, Eliana Butler, Wendy L. Hobbie, Natasha Buchanan Lunsford, Susan A. Sabatino, Lamia P. Barakat, Jill P. Ginsberg, Linda Fleisher, Janet A. Deatrick, Linda A. Jacobs, Bridget O'Hagan, Lindsay Anderson, Emily Fredericks, Sandra Amaral, Nadia DowshenKeisha Houston, Carolyn Vachani, Margaret K. Hampshire, James M. Metz, Christine E. Hill-Kayser, Dava Szalda

Research output: Contribution to journalArticle

6 Scopus citations

Abstract

Objective: Methods for developing mobile health (mHealth) interventions are not well described. To guide the development of future mHealth interventions, we describe the application of the agile science framework to iteratively develop an mHealth interven-tion for adolescent and young adult (AYA) survivors of childhood cancer. Method: We created the AYA STEPS mobile app (AYA Self-management via Texting, Education, and Plans for Survivorship) by modifying and integrating 2 existing programs: an online survivorship care plan (SCP) generator and a text messaging self-management intervention for AYA off treatment. The iterative development process involved 3 stages of agile science: (1) formative work, (2) obtaining feedback about the first AYA STEPS prototype, and (3) pilot testing and finalization of a prototype. We determined preferences of AYA stakeholders as well as discovered and addressed technology problems prior to beginning a subsequent randomized controlled trial. Results: AYA survivors reported that the app and the embedded tailored messages related to their health and SCP were easy to use and generally satisfying and beneficial. Usage data supported that AYA were engaged in the app. Technology glitches were discovered in the pilot and addressed. Conclusion: The iterative development of AYA STEPS was essential for creating a consistent and acceptable end user experience. This study serves as one example of how behavioral scientists may apply agile science to their own mHealth research.

Original languageEnglish (US)
Pages (from-to)31-43
Number of pages13
JournalClinical Practice in Pediatric Psychology
Volume7
Issue number1
DOIs
StatePublished - Mar 2019

All Science Journal Classification (ASJC) codes

  • Pediatrics, Perinatology, and Child Health
  • Developmental and Educational Psychology
  • Clinical Psychology
  • Applied Psychology

Keywords

  • Adolescents/young adults
  • Cancer
  • Self-management
  • mHealth

Fingerprint Dive into the research topics of 'Iterative development of a tailored mHealth intervention for adolescent and young adult survivors of childhood cancer'. Together they form a unique fingerprint.

  • Cite this

    Schwartz, L. A., Psihogios, A. M., Henry-Moss, D., Daniel, L. C., Ver Hoeve, E. S., Velazquez-Martin, B., Butler, E., Hobbie, W. L., Lunsford, N. B., Sabatino, S. A., Barakat, L. P., Ginsberg, J. P., Fleisher, L., Deatrick, J. A., Jacobs, L. A., O'Hagan, B., Anderson, L., Fredericks, E., Amaral, S., ... Szalda, D. (2019). Iterative development of a tailored mHealth intervention for adolescent and young adult survivors of childhood cancer. Clinical Practice in Pediatric Psychology, 7(1), 31-43. https://doi.org/10.1037/cpp0000272